People are so kind. We’re going to Phoenix soon to The Barrow Neurological Institute (BNI) at St. Joseph’s Hospital and Medical Center to have the baby evaluated by the doctors there. We reserved accommodations for a 2 bedroom suite through Expedia. We got a call from the manager and when she found out why we were coming to Phoenix, she upgraded us to a much more comfortable suite. It will truly be appreciated. It is so hard to keep a baby cooped up, and the extra space will be well used.

BNI has been the leader in the US for treatment of children with hypothalamic hamartoma tumors. We are anxious to connect with doctors who have extensive experience with this and to have them provide medical care for Ezri.

Here are some recent photos of that gorgeous baby (cooped up in her “Pack and Play”:

always happy    chewing the pack and play    what are you thinking   

look at those teeth